Why We Walk

Sickle cell disease affects over 100,000 people in the United States and millions worldwide, however, it remains a misunderstood and often invisible condition. This rare disease can cause complications that range from anemia to stroke, from organ damage to severe pain, and beyond. It is often diagnosed at birth, and individuals with the condition may face the realities of a reduced lifespan. Treatments are limited, funding is scarce and far too many end up suffering in silence.

We can do better for our warriors. Sickle cell disease regularly receives less funding for research into new treatments and therapies. Today, cuts to crucial programs like the Sickle Cell Data Collection Program, Sickle Cell Disease Treatment Demonstration Program, Sickle Cell Disease Newborn Screening Follow Up Program and Medicaid put our community at an even greater disadvantage.

We walk to raise awareness of these issues and to advocate for a better quality of life for sickle cell warriors everywhere. Will you join us?

About SCDAA

The Sickle Cell Disease Association of America, Inc. (SCDAA) serves as the national voice for sickle cell disease (SCD) working to resolve issues surrounding sickle cell disease and sickle cell trait. Since 1972, the organization has been on the forefront of improving the quality of health, life and services for individuals, families and communities affected by this rare disease and related conditions.

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